Jenny joined the Brigitte Trust 15 years ago as a Volunteer Visitor, and then came to work with us as an Area Coordinator. She took on the role of facilitator for our Neurological Support group in 2019, which she was delighted to do! We asked Jenny for a few words about the group for a social media post, and received the loveliest response;
“Five years ago, I was asked if I would lead and facilitate a Neurological Support group for those diagnosed with one of three neurological conditions; motor neurone disease, multiple sclerosis, and multiple system atrophy. I was delighted to take on the role.
Initially, we started monthly in-person meetings, but after COVID arrived we had to switch to online meetings on Zoom. Throughout COVID, we continued our meetings and found that as some attendees’ conditions deteriorated, this format was more preferable and we decided to keep it going. We have a really wonderful group and most of them have been with me from the beginning, back in 2019.
What makes this group so very special to me is that we are supporting people who have had to live with their condition for many years, and who still have many challenging years ahead. The group really benefits from being with others in a similar condition with whom they can openly discuss medication, treatments, therapies, and share news of interest to them all. They have since formed their own WhatsApp group and friendships have developed. The group really are an amazing bunch and are very welcoming to newcomers, so if you or anyone you know would like to join, please do get in touch!”
*Our Neurological Support group is available to anyone living in Surrey and diagnosed with a neurological condition. This includes Multiple sclerosis (MS), Motor neurone disease (MND), Multiple system atrophy (MSA) and Progressive supranuclear palsy (PSP). These regular meetings provide a safe place of information sharing, social interaction, and occasional speakers or activities.
If this is something you are interested in, please get in touch with Sarah Pattenden on 07469 932192 to join, or email us for further information at sarah.pattenden@brigittetrust.com. You can also read more about the group and submit a referral through the button above.